Each sweep of data collection for a longitudinal study covers a range of topics. This section looks at the different ways in which data is collected, and the tools used to capture information about different aspects of life.
This section looks at the instruments and tools used to capture information about different aspects of participants’ lives.
Study teams choose the best possible survey instrument to collect the information they are looking for. Because longitudinal studies collect a broad range of information at each sweep, they require more than one type of survey instrument each time.
Most data collection instruments are completed by the study participant, but as we learned in the introduction to longitudinal studies module, information is sometimes collected from important people in participants’ lives as well.
For instance, if the study participants are too young to answer questions themselves, the information will be collected from their parents. As the participants get older, the information they provide may be supplemented by information from their parents, siblings, teachers, school nurses, health visitors, partners or children.
Otis Dudley Duncan is credited with saying “if you want to measure change, don’t change the measure”. This is a particular challenge for longitudinal study teams, which often need to balance the appeal of maintaining consistent measures over time with the need to ensure they are collecting the highest quality and most relevant information possible.
For example, imagine a study team is particularly interested in looking at how blood pressure develops over someone’s lifetime and how it relates to different circumstances. In the early sweeps of data collection, they use the best technology available at the time, but at later sweeps they have the choice to move to a more advanced and accurate blood pressure reader that is now typically used on other studies.
Changing to the latter would improve their data quality and help make it comparable with other studies, but could involve new costs (if they have to purchase the new devices) and will make it harder to compare their new data with those collected earlier using the older devices.
A key way of minimising the impact of any change will be to identify or carry out calibration studies that compare measurements using the different machines.
Most longitudinal studies collect a considerable amount of information from participants through survey questionnaires. They might be administered by an interviewer (either face-to-face or over the phone), or completed by the participants on their own (either online or using a paper questionnaire). The topics covered in the questionnaire will vary considerably depending on the study and the participants’ stage of life.
A range of question formats can be used in a questionnaire, from simple yes/no questions to complex dietary diaries or calendars to capture the timing of different events.
Many questions in longitudinal study questionnaires are ‘closed’, which means that they ask participants to choose from a pre-set list of answer options.
Some questions are ‘open’ to allow participants to put their answer in their own words, either by writing it down themselves (if the questionnaire is being completed by the participant) or by the interviewer transcribing or recording them.
Cognitive assessments are exercises that test how participants think and how their minds are developing (or declining). They typically take the form of a series of questions or set of activities (a bit like games).
Study teams tend to use standardised assessments that have been thoroughly tested to ensure that they are capturing the right information. Using the same instruments over time or across studies can make comparisons easier.
For example, participants in the 1970 British Cohort Study took nine cognitive assessments at age 16, including a vocabulary test. The participants were given the same vocabulary test again at age 42. This allowed researchers to see whose vocabularies improved over time, and to determine what factors affected this.
One of the things they found was that readers of quality newspapers made more progress in vocabulary over time than people who did not read newspapers. Interestingly, tabloid readers actually made slightly less progress than those who never read newspapers at all.
Vocabulary is an example of an aspect of cognitive ability that needs to be measured with an age-appropriate instrument. For example, while 16- and 42-year-olds might be able to complete a written assessment, this might be a lot harder for a 5-year-old.
Many studies use the British Ability Scales (BAS) to measure cognition. The BAS are a set of age-appropriate standard tests of cognitive abilities and educational achievements. For example, the BAS Naming Vocabulary test assesses young children’s spoken vocabulary by showing them a series of coloured pictures of objects and asking them to name each one.
Some studies ask participants to keep a diary to record more detail about how they spend their time or what food they have eaten.
For example, the 1970 British Cohort Study and Millennium Cohort Study both included a time diary for participants (at age 16 and age 14 respectively). The diaries covered cohort members’ exercise, homework and social participation.
The Southampton Women’s Survey asked participants to keep a 24 hour food diary during pregnancy (at 11 weeks gestation) and a two day food diary when their child was three years old.
Many studies collect information about participants’ physical characteristics. Common examples include height, weight and blood pressure.
For example, the 1946 MRC National Survey of Health and Development has carried out the following assessments of participants since they were in the 30s:
Some health assessments are carried out by trained interviewers or nurses in the participant’s own home, while others are carried out in clinics.
Studies are interested increasingly in participants’ mental health and wellbeing. As with cognitive assessments, assessments of mental health and wellbeing typically take the form of a set of questions that have been developed and tested thoroughly.
The Malaise Inventory is a common assessment used to measure levels of psychological distress, or depression. It includes questions like these:
The participants’ answers are normally pooled together to create an aggregate score for psychological distress, however the questions can also be used separately.
Other common mental health assessments include the Strengths and Difficulties Questionnaire, which is used to identify mental health problems and measure common forms of psychopathology in children and young adults.
The Warwick-Edinburgh Mental Well-Being Scale (WEMWBS) is often used to assess wellbeing. It comprises 14 statements. Participants are asked to indicate how often each statement reflects how they have felt in the past two weeks, on a 5-item scale from ‘none of the time’ to ‘all of the time’.
Several studies collect biological samples, such as blood or saliva. Genetic information can be extracted from such samples, and can provide objective measures of people’s health (known as biological markers or biomarkers).
For example, the Avon Longitudinal Study of Parents and Children has collected biological samples from participants since it began. In addition to blood, hair and saliva, it has collected mother’s blood and placenta, as well as nail clippings and milk teeth from their children. It has genotype data about 1,500 children and their parents, which opens new routes of investigation into how genetic risk is passed from parent to child.
Some studies also collect qualitative information from participants, either through in-depth interviews or open-ended questions.
Qualitative instruments are often used when the information is difficult to collect accurately using fixed response options. For example, our understanding of participants’ social identities, their plans for the future, or their feelings about their neighbourhoods are all better understood through the participants’ own words.
As you can imagine, answering open-ended questions such as this takes considerably more time and effort for the participants. As such, these questions often have lower response rates than closed questions.
The 1958 National Child Development Study includes three substantial sets of qualitative information, collected at ages 11 and 50.
At the Age 11 Sweep in 1969, participants were asked to write an essay on the following topic: ‘Imagine you are now 25 years old. Write about the life you are leading, your interests, your home life and your work at the age of 25. (You have 30 minutes to do this).’
Just over 13,600 participants completed the essay. The average length of their responses was 204 words. The children wrote about a range of different themes, including family, friends, domestic labour, cars, money, jobs, working hours, relationships and football.
Further information about this study can be found at the UK Data Service.
At the Age 50 Sweep in 2008, participants were sent a paper questionnaire to complete themselves in advance of the face-to-face interview. The last question asked them to “Imagine that you are now 60 years old…please write a few lines about the life you are leading (your interests, your home life, your health and well-being and any work you may be doing).”
Nearly 7,400 participants answered the question. The average length of their responses was 57 words, but some participants wrote as few as three or four words, and some wrote more than 150.The answers covered a range of different themes, including work, money, travel, family, health and death.
Further information about this study can be found at the UK Data Service.
Just after the main interviews at age 50, 230 participants took part in a qualitative sub-study. In-depth interviews were carried out to capture information on neighbourhood and belonging, social participation and leisure activities, friendships, life story and trajectories, identities, and the experience of taking part in the study over time. The interviews were about 90 minutes long, on average.
Further information about this study can be found at the UK Data Service.