This section looks at the instruments and tools used to capture information about different aspects of participants’ lives.
Study teams choose the best possible survey instrument to collect the information they are looking for. Because longitudinal studies collect a broad range of information at each sweep, they require more than one type of survey instrument each time.
Most data collection instruments are completed by the study participant, but as we learned in the introduction to longitudinal studies module, information is sometimes collected from important people in participants’ lives as well.
For instance, if the study participants are too young to answer questions themselves, the information will be collected from their parents. As the participants get older, the information they provide may be supplemented by information from their parents, siblings, teachers, school nurses, health visitors, partners or children.
Otis Dudley Duncan is credited with saying “if you want to measure change, don’t change the measure”. This is a particular challenge for longitudinal study teams, which often need to balance the appeal of maintaining consistent measures over time with the need to ensure they are collecting the highest quality and most relevant information possible.
For example, imagine a study team is particularly interested in looking at how blood pressure develops over someone’s lifetime and how it relates to different circumstances. In the early sweeps of data collection, they use the best technology available at the time, but at later sweeps they have the choice to move to a more advanced and accurate blood pressure reader that is now typically used on other studies.
Changing to the latter would improve their data quality and help make it comparable with other studies, but could involve new costs (if they have to purchase the new devices) and will make it harder to compare their new data with those collected earlier using the older devices.
A key way of minimising the impact of any change will be to identify or carry out calibration studies that compare measurements using the different machines.
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